Examples
Worked examples
- Is an instance
A patient partner co-authoring a paper on living-with-diabetes research, having contributed to study design and analysis interpretation
Counter-examples
Looks similar, but isn't
- Not an instance
A research participant whose data is included in the study is not a patient partner — they are a subject of the research
Editorial commentary
Patient and Public Involvement (PPI) contributions are credited in funder-mandated PPI statements, acknowledgements, and increasingly co-authorship where contribution meets criteria. GRIPP2 is the canonical reporting checklist. Compensation, training, and named credit (with consent) are emerging norms.
References
- GRIPP2 Reporting Checklist (Staniszewska et al. 2017 BMJ)
- INVOLVE National Standards for Public Involvement (2018)
Also known as
PPI contribution · Patient and public involvement · Lived-experience contribution
Machine-readable encodings
Use in your systems
xml
<role vocab="credit"
vocab-identifier="https://casrai.org/dictionary/"
vocab-term="Patient-partner contribution (PPI)"
vocab-term-identifier="https://casrai.org/dictionary/term/patient-partner-contribution-ppi" />json
{
"@context": "https://schema.org",
"@type": "DefinedTerm",
"name": "Patient-partner contribution (PPI)",
"identifier": "https://casrai.org/dictionary/term/patient-partner-contribution-ppi",
"description": "Substantive input from patients, service users, carers, or members of the public into the design, conduct, analysis, or dissemination of health and care research — as partners in the research process rather than as study participants.",
"inDefinedTermSet": "https://casrai.org/dictionary/domain/credit-extensions-and-adjacent-contribution-vocabularies/",
"url": "https://casrai.org/dictionary/term/patient-partner-contribution-ppi",
"sameAs": [
"PPI contribution",
"Patient and public involvement",
"Lived-experience contribution"
],
"license": "https://creativecommons.org/licenses/by/4.0/"
}
