v2026.1CASRAI Dictionary 1,610 entries across 24 domains · CC-BY 4.01,610 entries · CC-BY 4.0

Dictionary termTrack AStablev2026.2

Patient-partner contribution (PPI)

Substantive input from patients, service users, carers, or members of the public into the design, conduct, analysis, or dissemination of health and care research — as partners in the research process rather than as study participants.

ByCASRAI Editorial Board

· Last updated 21 May 2026

Ask about Patient-partner contribution (PPI)

Answers are drawn from this dictionary entry and the rest of the CASRAI corpus, with a link to every source.

Answers are AI-generated from CASRAI’s own published pages and can be wrong, so check the linked sources before relying on one; your question is logged without personal data — never sold, never used to train a third-party model — to show us what CASRAI is missing, so please do not type personal or confidential details. How we use this

Examples

Worked examples

Is an instance
A patient partner co-authoring a paper on living-with-diabetes research, having contributed to study design and analysis interpretation

Counter-examples

Looks similar, but isn't

Not an instance
A research participant whose data is included in the study is not a patient partner — they are a subject of the research

Editorial commentary

Patient and Public Involvement (PPI) contributions are credited in funder-mandated PPI statements, acknowledgements, and increasingly co-authorship where contribution meets criteria. GRIPP2 is the canonical reporting checklist. Compensation, training, and named credit (with consent) are emerging norms.

References

GRIPP2 Reporting Checklist (Staniszewska et al. 2017 BMJ)
INVOLVE National Standards for Public Involvement (2018)

Also known as

PPI contribution · Patient and public involvement · Lived-experience contribution

Machine-readable encodings

Use in your systems

JATS XML <role> element

xml

<role vocab="credit"
      vocab-identifier="https://casrai.org/dictionary/"
      vocab-term="Patient-partner contribution (PPI)"
      vocab-term-identifier="https://casrai.org/dictionary/term/patient-partner-contribution-ppi" />

Schema.org DefinedTerm (JSON-LD)

json

{
  "@context": "https://schema.org",
  "@type": "DefinedTerm",
  "@id": "https://casrai.org/dictionary/term/patient-partner-contribution-ppi",
  "name": "Patient-partner contribution (PPI)",
  "identifier": "https://casrai.org/dictionary/term/patient-partner-contribution-ppi",
  "description": "Substantive input from patients, service users, carers, or members of the public into the design, conduct, analysis, or dissemination of health and care research — as partners in the research process rather than as study participants.",
  "inDefinedTermSet": "https://casrai.org/dictionary/domain/credit-extensions#set",
  "url": "https://casrai.org/dictionary/term/patient-partner-contribution-ppi",
  "sameAs": [
    "PPI contribution",
    "Patient and public involvement",
    "Lived-experience contribution"
  ],
  "license": "https://creativecommons.org/licenses/by/4.0/",
  "publisher": {
    "@id": "https://casrai.org/#organization"
  },
  "dateModified": "2026-05-21T01:59:23",
  "inLanguage": "en"
}

Referenced across the research world

View CASRAI adoption →