Examples
Worked examples
- Is an instance
A clinical-trial design includes patient partners on the steering committee from grant submission onward.
- Is an instance
A research team co-produces lay summaries of findings with a PPI panel before publication.
Counter-examples
Looks similar, but isn't
- Not an instance
A grant application with a 'PPI section' written without consulting any public contributors.
- Not an instance
Inviting one patient to a single meeting and labelling the project 'PPI-led'.
Editorial commentary
PPI is a core requirement of UK health and social-care research funding (NIHR) and is embedded in many international funder requirements. INVOLVE (later integrated into NIHR Centre for Engagement and Dissemination) distinguishes involvement (active partnership), engagement (information sharing and dialogue) and participation (taking part as a research subject). PPI is integrated across the research cycle: identifying priorities, designing studies, undertaking research, interpreting findings, disseminating, and implementing. The UK Standards for Public Involvement (2019) define six standards: inclusive opportunities, working together, support and learning, governance, communications, and impact.
References
- NIHR Centre for Engagement and Dissemination. UK Standards for Public Involvement, 2019 (sites.google.com/nihr.ac.uk/pi-standards).
Also known as
PPI · Patient and public engagement · Public involvement (research)
Machine-readable encodings
Use in your systems
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